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sleeping beauty
Nicole Delien, a Pennsylvania teenager, slept for 64 days from Thanksgiving into January – her longest sleeping episode yet – as she struggles with a rare sleep disorder called Kleine-Levine, or Sleeping Beauty Syndrome, which affects an estimated 1,000 people around the world.
During her sleep spells, which began when she was six and a half, Nicole Delien, now 17,will wake up in a confused state for small periods of time to eat, drink and use the bathroom and then fall back to sleep.
“I don’t remember what happens [during that time],” Nicole Delien told the Today Show on Tuesday.
“It’s hard for me to talk about it, because I’ve missed so many days of my life. I just don’t like when people call it a fairy tale, because it’s really not.”
Nicole Delien’s mother, Vicki, says her daughter will sleep 18 to 19 hours a day, and when she eventually wakes up to eat she is in a “sleepwalking state which she doesn’t remember”, KDKA in Pittsburgh reported last week.
The Delien family also recently appeared on Jeff Probst’s syndicated talk show to make sure other families become aware of the rare disorder.
Vicki Delien told reporters that it was very frustrating trying to get a diagnosis for her daughter. She said it took several hospital trips to figure out what has been afflicting her.
Eventually, Dr. Michael Rancurello, a psychiatrist at Allegheny General Hospital in Pittsburgh, Pennsylvania, was able to pinpoint the disorder and offer some suggestions on how to manage it, including medication.
“It’s really not sleeping,” he told the Today Show, calling Nicole Delien’s unconscious state a “delirium”.
“I think it’s a manifestation of some brain malfunction,” he said.
Nicole Delien struggles with a rare sleep disorder called Kleine-Levine, or Sleeping Beauty Syndrome, which affects an estimated 1,000 people around the world
Individuals affected with the disorder may go for a period of “weeks, months or even years without experiencing any symptoms, and then they reappear with little warning” the Kleine-Levin Syndrome Foundation website states.
In addition to excessive sleeping, those symptoms include disorientation, hallucination, child-like behavior, binge-eating and periods of hyper-sexuality when awake, according to an Oxford Journals report.
That report says the disorder predominately affects young males.
Symptoms may be related to malfunctions in the parts of the brain that govern appetite, sleep and sexuality, according to the National Institute of Neurological Disorders and Stroke.
The cause of Kleine-Levin Syndrome is unknown, both medical sources indicate.
Eric Haller, a young college student with the disorder, told ABC News in February that he gets sick and falls into a sleeping episode about eight to 10 times a year.
He still shows an aptitude for working and learning. The 21-year-old from Placentia, California, maintains a 3.5 average at Fullerton State University and interns for the Los Angeles Clippers. However, his abilities decline when he slips into a trance.
Kleine-Levin Syndrome can last for eight to fourteen years of an afflicted person’s life, Dr. Michael Rancurello said, noting that Nicole Delien is reaching the mean length of symptoms right now. Medication helps spread her episodes further apart, her family says.
Still, Nicole Delien says she has missed out on Thanksgiving, Christmas and other family celebrations due to those spells.
She also missed out on an opportunity to meet pop singer Katy Perry. But when Perry later learned about Nicole Delien’s disorder she made sure Nicole was able to visit her backstage at a performance in Connecticut.
As she grows older, Nicole Delien says she hopes to have “more good memories like that one”.
Nicole Delien’s last sleeping episode was in March.
She said that she’s scared of when it will happen again.
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Angelina Jolie’s daughter Vivienne was cast as the young Princess Aurora in her upcoming live action film Maleficent.
And now two of Angelina Jolie’s six children – Pax and Zahara – will also make their big-screen debuts in the same movie.
“They have smaller parts,” a source told Us Weekly, adding the 8-year-old boy and 7-year-old girl will not have speaking roles.
“Shiloh was supposed to be in it, too, but she was bored and not in the mood during the day her part was supposed to happen, so she ended up not being in the film.”
The tomboyish 6-year-old did, however, have a role as her father Brad Pitt’s daughter in his film The Curious Case of Benjamin Button back in 2008.
Angelina Jolie, 37, stars as the title role in Disney’s reimagining of the classic fairy tale Sleeping Beauty told from the evil doer’s point of view.
The focus of the film centres on the events that hardened Maleficent’s heart, leading her to curse the Princess Aurora played by Elle Fanning.
Back in August, The Sun reported that once 4-year-old Vivienne was cast as the younger version of 14-year-old Elle Fanning, the rest of the kids wanted to be included too.
“Ange thought it would be a fun experience for her and Viv to share, and Viv is a natural,” said the source.
“The other kids are now nagging Ange and Brad to land them roles.”
Angelina Jolie’s daughter Vivienne was cast as the young Princess Aurora in her upcoming live action film Maleficent
Both of the twins, Vivienne and Knox, were spotted visiting their famous mother on the set back in June and at one point Angelina Jolie held one of them in front of the soundstage’s green screen.
The next day, Pax and Shiloh were seen walking around the Buckinghamshire set with a minder.
Wearing her horned headdress, complete with prosthetic cheekbones and a long brown dress and matching cape, the dark-haired star looked frightening as the villain.
Speaking about her new film Angelina Jolie told EW: “It’s not anti-princess, but it’s the first time they’re looking at this epic woman.
“I hope in the end you see a woman who is capable of being many things, and just because she protects herself and is aggressive, it doesn’t mean she can’t have other [warmer] qualities.”
She said: “It sounds really crazy to say that there will be something that’s good for young girls in this, because it sounds like you’re saying they should be a villain. [Maleficent] is actually a great person. But she’s not perfect. She’s far from perfect.
“In general, it’s a very good message to say, <<Let’s look at something from the other side>>. But then also, what our challenge will be – and the script writer [The Lion King and Alice in Wonderland’s Linda Woolverton] has already cracked it – is not to simplify it, not to just reverse the story but tell a bigger story that doesn’t point the finger [at Princess Aurora] either.”
Juno Temple, Sam Riley, and Miranda Richardson also appear in the film directed by Robert Stromberg, which is set for release on March 14, 2014.
Meanwhile, according to the New York Daily News, the Jolie-Pitt clan has already gotten into the autumn spirit as recent aerial shots of the A-list couple’s Los Feliz home revealed a backyard table packed with Halloween pumpkins.
Angelina Jolie and Brad Pitt, 48, also have an 11-year-old son named Maddox.
Angelina Jolie is certainly in need of regular touch-ups for her latest role and was spotted being pampered on the set of Maleficent in Buckinghamshire today.
Angelina Jolie, 37, has taken on the role of evil sorcess Maleficient in an adaptation of Sleeping Beauty and to do so, she has undergone something of a transformation.
The actress was seen in the middle of a field today in full costume as she continued to film scenes for the upcoming Disney movie.
Wearing a long brown cape and black horns, Angelina Jolie was spied having her make-up retouched by a female artist while a male member of the crew dealt with her long brunette hair.
It was only yesterday that fans got a sneak peek of Angelina Jolie’s character and what they can expect from the fairytale film.
Wearing a leather horned headdress, and yellowed contacts, Angelina Jolie was also given a bit of help in the cheek department with the addition of some Lady Gaga-style cheek prosthetics.
Angelina Jolie is certainly in need of regular touch-ups for her latest role and was spotted being pampered on the set of Maleficent in Buckinghamshire
Angelina Jolie plays the title role in the updated version of Disney’s 1959 animated feature Sleeping Beauty and of her costuming she said: “We’re experimenting with different things. But the horns are the horns – you can’t deny them. You have to have horns.”
In this updated version, the focus of the film centres on the events that hardened Maleficent’s heart, leading her to curse the baby Aurora (Sleeping Beauty), played by Elle Fanning.
Angelina Jolie told EW: “It’s not anti-princess, but it’s the first time they’re looking at this epic woman.
“I hope in the end you see a woman who is capable of being many things, and just because she protects herself and is aggressive, it doesn’t mean she can’t have other [warmer] qualities.”
As a woman who is used to dividing opinion, Angelina Jolie was clearly attracted to taking on such an “imperfect” character.
Angelina Jolie said: “It sounds really crazy to say that there will be something that’s good for young girls in this, because it sounds like you’re saying they should be a villain. [Maleficent] is actually a great person. But she’s not perfect. She’s far from perfect.”
Angelina Jolie was seen taking her family to see musical Wicked based on the novel by Gregory Maguire while in London, which similarly tells the story of the Wicked Witch Of The West before she turns bad.
“In general, it’s a very good message to say, <<Let’s look at something from the other side>>. But then also, what our challenge will be – and the script writer [The Lion King and Alice in Wonderland’s Linda Woolverton] has already cracked it – is not to simplify it, not to just reverse the story but tell a bigger story that doesn’t point the finger [at Princess Aurora] either.”
According to the popular fairytale, Maleficent was angry that she wasn’t invited to the beautiful Princess’s christening, and as a result cursed the infant to prick her finger on the spindle of a spinning wheel and die before the end of her 16th birthday.
Other stars signed up to the film include Miranda Richardson, who will play Queen Ulla, and Juno Temple, as Thistletwit, one of the three fairies tasked with taking care of Aurora in a cottage in the woods – which, going on the set, may now be a tent in a small settlement.
She is joined by Imelda Staunton will play fairy Knotgrass and Lesley Manville who will star as fairy Flittle.
But it is still unclear who will play Prince Philip, Aurora’s love and the man who defeats Maleficent, although as other characters’ names have been changed, it could well be Control star Sam Riley, who is billed to play Diaval.
Angelina Jolie and Brad Pitt have made the U.K. their temporary home and have been seen on family outings to the theatre and stores.
Crew member have been busy erecting tepee style tents, stoves over open fires, crumbly brick walls and horse-drawn carts.
And while they work to make the set look perfect for their star, security guards with huge Rottweilers patrol the perimeter.
The film will be directed by Robert Stromberg and is set for release on March 14, 2014.
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